A Place to Remember
A Place To Remember is committed to publishing and providing uplifting support materials and resources for those who have been touched by a crisis in pregnancy or the death of a baby.
American Medical Association
The mission of the AMA Alliance is to partner with physicians to promote the good health of America and support the family of medicine.
Centers for Disease Control & Prevention
Their mission: To promote health & quality of life by preventing & controlling disease, injury, and disability.
Website provides definitions of various diseases or conditions, their treatment & prevention in "Health Topics A-Z."
Clinical Trials
Providing patients, family members & members of the public current information about clinical research studies which they may be able to join.
Clinical trials are research studies in which new treatments - drugs, diagnostics, procedures, vaccines, & other therapies - are tested in people to see if they are safe & effective.
Compassionate Allowances
Social Security has an obligation to provide benefits quickly to applicants whose medical conditions are so serious that their conditions obviously meet disability standards.
Department of Health & Human Services
The Department of Health & Human Services is the United States government's principal agency for protecting the health of all Americans & providing essential human services, especially for those who are least able to help themselves.
Down Syndrome Links
Recommended links for Down Syndrome by parents with a child who has Down Syndrome.
Food & Drug Administration
Promote & protect the public health by helping safe & effective products reach the market in a timely way, & monitoring products for continued safety after they are in use.
Gene Info
Clinical Genetics Site for genetic professionals contains clinical, research, and educational resources for genetic counselors, as well as clinical and medical geneticists, with links to professional societies, and genetic support groups.
Genetic Alliance
The Genetic Alliance is an international coalition representing more than 300 consumer and health professional organizations with millions of members--all working together to promote healthy lives for everyone impacted by genetics.
The Alliance supports individuals with genetic conditions and their families, educates the public and advocates for consumer-informed public policies.
Genetic Conditions/Rare Conditions Information Site
Site provides information pertaining to lay advocacy and support groups, information on genetic conditions /birth defects for professionals, educators, and individuals.
Genetics Home Reference
Patient friendly, reliable up-to-date information about genetic conditions.
Go Local North Dakota
Dealing with a health issue is stressful. When looking for answers, medical librarians are experts in helping find the information needed to provide some answers. Go local links directly to web sites or contact information for health care services.
Healthfinder
A free guide to reliable consumer health and human services information, developed by the U.S. Department of Health and Human Services.
Healthfinder® can lead you to selected online publications, clearinghouses, databases, Web sites, & support & self-help groups, as well as government agencies & not-for-profit organizations that produce reliable information for the public.
HRSA - Health Resources and Services Administration
The interactive training course aims to raise the quality of provider-patient interactions by teaching providers and their staff how to gauge and respond to their patients' health literacy, cultural background, and language skills.
Indian Health Service
IHS is the principal federal health care provider & health advocate for Indian people. Its goal is to assure that comprehensive, culturally acceptable personal & public health services are available & accessible to American Indian & Alaska Native people.
Information for Genetic Professionals
Information for genetic professionals, University of Kansas Medical Center, with clinical, research, and educational resources for genetic counselors, clinical geneticists, and medical geneticists
Journal of Medical Genetics - Human Genome Journal
JMG is a leading international human genome journal. Register FREE to receive monthly table of contents email alerts. Journal of Medical Genetics is part of the BMJ Publishing Group.
Journal Watch Pediatrics & Adolescent Medicine
Edited and reviewed by more than 80 physicians, JWatch regularly combs 180 medical journals for important findings in Pediatrics.
Kids Count
KIDS COUNT, is a project of the Annie E. Casey Foundation, and is a national and state-by-state effort to track the status of children in the U.S.
For statistics for children in North Dakota, click on the link below:
NDKidscount
Let's Face It
An information and support network for people with facial difference, their families, friends and professionals.
March of Dimes
Obtain fact sheets of birth defects and pregnancy.
March of Dimes Peristats
Gives state by state information about perinatal health statistics.
MinnesotaHelp.info
A comprehensive statewide database of community services.
National Institutes of Health
Their mission: To uncover new knowledge that will lead to better health for everyone. NIH works toward that mission by
1) Conducting research in its own laboratories
2) Supporting the research of non-Federal scientists in universities, medical schools, hospitals, & research institutions throughout the country & abroad
3) Helping in the training of research investigators
4) Fostering communication of medical information
National Organization for Rare Disorders
National Organization for Rare Disorders (NORD) is a unique federation of voluntary health organizations dedicated to helping people with rare "orphan" diseases and assisting the organizations that serve them. NORD is committed to the identification, treatment, and cure of rare disorders through programs of education, advocacy, research, and service.
National Society of Genetic Counselors
Promotes the professional interests of genetic counselors and provides a network for professional communications.
North Dakota Department of Health
Public Health information available online.
North Dakota Chapter of the American Academy of Pediatrics
Dedicated to the health of all children. Committed to the attainment of optimal physical, mental, & social health & well-being for all infants, children, adolescents, & young adults. Site maintained by Dr. Bernard J. Hoggarth, MD, FAAP, Grand Forks, North Dakota.
Office of Research on Women's Health
This branch of the National Institutes of Health promotes, stimulates, & supports efforts to improve the health of women through biomedical & behavioral research.
OMIM
Online Mendelian Inheritance in Man (OMIM), a catalog of human genes and genetic disorders.
Online Clinic
The website of Larry Burd, Ph.D., Educational Behavioralist, Pediatric Therapy, Altru Health Institute, Grand Forks, ND
Save Babies Through Screening
A non-profit voluntary organization whose mission is to improve the lives of babies by preventing mental retardation and death resulting from disorders detectable through newborn screening. A greater understanding and awareness of these tests and disorders will help to prevent unnecessary complications since most can be effectively treated when caught early.
SHARE - (Pregnancy and Infant Loss Support Inc.)
SHARE Pregnancy and Infant Loss Support, Inc. is available to those whose lives are touched by the tragic death of a baby through miscarriage, stillbirth or newborn death.
Substance Abuse & Mental Health Services Administration
The Federal agency charged with improving the quality and availability of prevention, treatment, & rehabilitative services in order to reduce illness, death, disability, & cost to society resulting from substance abuse & mental illnesses.
Tox Town
An introduction to toxic chemicals and environmental health risks you might encounter in everyday life, in everyday places.
Tuberous Sclerosis Alliance
The Tuberous Sclerosis Alliance is dedicated to finding a cure for tuberous sclerosis while improving the lives of those affected.
Unique
Unique is a source of information, mutual support and self-help to families of children with any rare chromosome disorders including deletions, trisomy, balanced translocations, unbalanced translocations, rings, inversions, duplications, tetrasomy, monosomy, triploidy, isodicentric, marker, mosaic, sex chromosome aneuploidy (e.g. 47,XXX 47,XYY 48,XXXX 49,XXXXY etc.) etc.
Women's Way
Breast and Cervical Cancer screening program for women with financial and insurance barriers. Danielle Kenneweg, Coordinator, Cancer Prevention and Control, ND Department of Health
Organization of Teratogen Information Services
Provides comprehensive & multidisciplinary resources for medical consultation on prenatal exposures. Teratogen services in the patient's area interpret information on known & potential reproductive risks into risk assessments which are communicated to individuals of reproductive age & their health care providers.
