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A Place to Remember www.aplacetoremember.com A Place To Remember is committed to publishing and providing uplifting support materials and resources for those who have been touched by a crisis in pregnancy or the death of a baby. American Association on Mental Retardation http://www.aamr.org/index.shtml AAMR promotes progressive policies, sound research, effective practices, and universal human rights for people with intellectual disabilities. American Heart Association www.americanheart.org A national voluntary health agency whose mission is to reduce disability and death from cardiovascular diseases. The Arc www.thearc.org The Arc of the United States works through education, research and advocacy to improve the quality of life for children and adults with mental retardation and related developmental disabilities and their families and works to prevent both the causes and the effects of mental retardation. AUCD Association of University Centers on Disabilities http://www.aucd.org/ A network of interdisciplinary Centers advancing policy and practice for and with individuals with developmental and other disabilities, their families, and communities Center for the Study of Autism http://www.autism.org/ Provides information about autism to parents and professionals, and conducts research on the efficacy of various therapeutic interventions. CDC Autism Information Center http://www.cdc.gov/ ncbddd/dd/ddautism.htm Contains information as to state activities, CDC activities, answers questions as to what are autism spectrum disorders and links as to resources for families and researchers. CHADD http://www.chadd.org/ Children and Adults with Attention-Deficit/Hyperactivity Disorder (CHADD), is a national organization providing education, advocacy and support for individuals with AD/HD. Easter Seals www.easter-seals.org Helping children and adults with disabilities is who we are... it's what we do. Easter Seals children's services help kids with disabilities succeed in school. Easter Seals employment programs help people learn job skills and enter the workplace. Easter Seals physical medicine and rehabilitation services help people return to their everyday lives. Easter Seals services are comprehensive and individualized to meet each client's needs, family-focused to meet each family member's concerns, outcome-oriented with a goal of enhanced independence, and cost-effective benefiting from public support. EParent Magazine www.eparent.com EP's on-line resource providing information, support, ideas, encouragement & outreach for parents and families of children with disabilities, and the professionals who work with them. Family Voices www.familyvoices.org A national grassroots network of families & friends speaking on behalf of children with special health care needs. We are families from throughout the United States who have children with special health needs .  W e are also caregivers, professionals, and friends whose lives have been touched by these children and their families. Genetic Alliance www.geneticalliance.org The Genetic Alliance is an international coalition representing more than 300 consumer and health professional organizations with millions of members--all working together to promote healthy lives for everyone impacted by genetics. The Alliance supports individuals with genetic conditions and their families, educates the public and advocates for consumer-informed public policies. Genetic Conditions/Rare Conditions Information Site http://www.kumc.edu/gec/support/groups.html Site provides information pertaining to lay advocacy and support groups, information on genetic conditions /birth defects for professionals, educators, and individuals. Healthfinder www.healthfinder.gov A free guide to reliable consumer health and human services information, developed by the U.S. Department of Health and Human Services. Healthfinder® can lead you to selected online publications, clearinghouses, databases, Web sites, & support & self-help groups, as well as government agencies & not-for-profit organizations that produce reliable information for the public. Healthopedia www.healthopedia.com Medical consumer information resource contains comprehensive and reliable content in patient-friendly language on over 1,500 health topics, 70 focussed health centers, 450 medical illustrations, more than 11,000 drugs and medications, and daily health news. Internet Resources for Special Children (IRSC) http://www.irsc.org/ The IRSC web site is dedicated to children with disabilities and other health related disorders worldwide. Providing numerous categories and links, Online Communities - a place where you can ask questions or share information, access to recent news articles, and books. Let's Face It www.faceit.org An information and support network for people with facial difference, their families, friends and professionals. To obtain 2006 spring resource update click HERE. Maternal & Child Health Bureau http://mchb.hrsa.gov/ We strive for a society where children are wanted and born with optimal health, receive quality care and are nurtured lovingly and sensitively as they mature into healthy, productive adults. March of Dimes www.modimes.org Helping families have healthy pregnancies & healthy babies . National Center on Birth Defects and Developmental Disabilities http://www.cdc.gov/ncbddd We promote the health of babies, children, and adults, and enhance the potential for full, productive living. The National Down Syndrome http://www.ndss.org/content.cfm The National Down Syndrome Society was established in 1979 to ensure that all people with Down syndrome have the opportunity to achieve their full potential in community life. NDSS continues to increase public awareness about Down syndrome and discover its underlying causes through research, education and advocacy. National Organization on Fetal Alcohol Syndrome http://www.nofas.org/main/index2.htm NOFAS is committed to raising public awareness of FAS-the leading known preventable cause of mental retardation and birth defects-and to developing and implementing innovative ideas in prevention, intervention, education and advocacy in communities throughout the nation. National Information Center for Children and Youth with Disabilities http://www.nichcy.org/ A national information center that provides information on disabilities and disability-related issues. Anyone can use the services-families, educators, administrators, journalists, students. Our special focus is children and youth (birth to age 22). National Hydrocephalus Foundation www.nhfonline.org Provides informational brochures, help guides, reference library, videos/CD's on hydrocephalus, support groups, and assists others in starting an NHF support group in their area. National Marfan Foundation http://www.marfan.org/ Disseminates accurate and timely information about Marfan Syndrome to patients, family members and the health care community. Provides a network of communications for patients and relatives to share experiences, support one another and improve their medical care. NMF also supports and foster research. National PKU News http://www.pkunews.org/ A non-profit organization providing up-to-date, accurate news and information to families and professionals dealing with phenylketonuria. Medicare Prescription Drug Assistance Program www.medicare.gov/Prescription/Home.asp This section provides information on public and private programs that offer discounted or free medication, programs that provide help with other health care costs, and Medicare health plans that include prescription coverage.It also provides information on even more ways you can reduce your prescription drug costs, such as by using generic alternatives. OSERS Office of Special Education and Rehabilitation Services http://www.ed.gov/about/offices/ list/osers/osep/index.html?src=mr Dedicated to improving results for infants, toddlers, children and youth with disabilities ages birth through 21 by providing leadership and financial support to assist states and local districts. Patient Advocate Foundation http://www.patientadvocate.org National non-profit organization that seeks to safeguard patients through effective mediation assuring access to care, maintenance of employment and preservation of their financial stability. Save Babies Through Screening www.savebabies.org A non-profit voluntary organization whose mission is to improve the lives of babies by preventing mental retardation and death resulting from disorders detectable through newborn screening. A greater understanding and awareness of these tests and disorders will help to prevent unnecessary complications since most can be effectively treated when caught early. SHARE (Pregnancy and Infant Loss Support Inc.) www.nationalshareoffice.com SHARE Pregnancy and Infant Loss Support, Inc. is available to those whose lives are touched by the tragic death of a baby through miscarriage, stillbirth or newborn death. Sibling Support Project http://www.thearc.org/siblingsupport/ The Sibling Support Project is a national program dedicated to the interests of brothers and sisters of people with special health and developmental needs. The Project's primary goal is to increase the availability of peer support and education opportunities for brothers and sisters of people with special health and developmental needs. The Sibling Support Project is now a part of The Arc of the United States. Social Sercurity Association www.ssa.gov This is a social security program for disabled people, including children. Spina Bifida Association of America (SBAA) www.sbaa.org SBAA is a national organization that addresses the needs of families and individuals with spina bifida. Spina Bifida and Hydrocephalus Association of Canada (SBHAC) www.sbhac.ca The Spina Bifida and Hydrocephalus Association of Canada strives to be the leading national voluntary health organization, setting the standard for education, public awareness and research of spina bifida and hydrocephalus. TASH www.tash.org An international association of people with disabilities, their family members, other advocates, and professionals fighting for a society in which inclusion of all people in all aspects of society is the norm. Unique www.rarechromo.org Unique is a source of information, mutual support and self-help to families of children with any rare chromosome disorders including deletions, trisomy, balanced translocations, unbalanced translocations, rings, inversions, duplications, tetrasomy, monosomy, triploidy, isodicentric, marker, mosaic, sex chromosome aneuploidy (e.g. 47,XXX 47,XYY 48,XXXX 49,XXXXY etc.) etc. Women's Way  www.womensway.ne Breast and Cervical Cancer screening program for women with financial and insurance barriers.  Danielle Kenneweg, Coordinator, Cancer Prevention and Control, ND Department of Health Wrightslaw www.wrightslaw.com Accurate, up-to-date information about special education law and advocacy for children with disabilities.   Adaptive Products and Assistive Technology http://www.familyvillage.wisc.edu/mall.htm This Accessibility Shopping Mall includes resources for adaptive products and assistive technology.