Univerisity of North Dakota

John T. Martsolf, MD
Department of Pediatrics/Division of Medical Genetics
UND School of Medicine & Health Sciences
501 N. Columbia Road
PO Box 9037
Grand Forks, ND 58202-9037
(701)777-4277

This is not a comprehensive list for genetic resources. If you are aware of a site which should be included, please email the webmaster with the Name, E-mail address and a brief discription of the organization. Thank you.

 

The Arc Upper Valley
www.thearcuppervalley.com An advocacy organization for children and adults with mental retardation and related disabilities (Down Syndrome, Autism, etc.).  Provides support groups for parents and siblings as well.

Bismarck Public Schools FEET

(Family Educator Enhancement Team)

(701) 224-8276 or 223-5470 Parents & educators working together to improve educational opportunities for children with disabilities. FEET sponsors trainings for parents and educators, distributes a newsletter, provides parents as mentors, purchases books and videos for the public library.
Breast Cancer Support
http://www.hersource.com/breast/
06/6b/supportgroup.cfm?State=ND
Searching for a safe place to meet people to talk about your experience dealing with breast cancer?

At this site you may also learn about breast cancer diagnostic procedures such as mammograms. Read about breast cancer treatment options (radiation, chemotherapy and breast surgery). Learn about breast cancer genetics, support groups, make a smart breast health plan and review many other items.

Children's Special Health Services

http://www.state.nd.us/humanservices
/services/medicalserv/cshs/
Serves children with special health care needs and their families.

To access website click on departments human services children's special health services

Community Action ND
http://www.state.nd.us/
dcs//communitymap.html
 
Provides the people of North Dakota with effective, efficient and customer oriented administration of federal and state programs for: Community Development, Energy Efficiency/Renewable Energy, Housing and Self Sufficiency
Dakota Center for Independant Living http://www.dakotacil.org/

The Dakota Center for Independent Living believes in self-determination for people with disabilities and creates the environment in which it is achieved.

Early Childhood Special Education for Children with Disabilities
Ages 3-5
www.dpi.state.nd.us/speced
/ecsecda/index.shtm
 
Easter Seals
http://www.easter-seals.org

Assists individuals with disabilities and special needs, and their families by helping someone improve physical mobility, return to work or simply gain greater independence for everyday living, Easter Seals offers a variety of services to help people with disabilities address life's challenges and achieve personal goals.

To locate Easter Seals nearest you, search in your state. A list of offices will appear.

Family to Family Network

www.med.und.nodak.edu/f2f The Family to Family Network is a support network based on the philosophy that parents of children with special needs, who have successfully adapted to their child's disability, are the best guides for new parents. Experienced families serve as "Veteran families" to provide a unique resource for other families with children who have recently been diagnosed with a disability.

Family Voices
http://www.geocities.com/ndfv/

A North Dakota Chapter of families speaking out for children with special needs.

Federation of Families

Currently NO North Dakota web site

National web site: www.ffcmh.org

A support network and family-driven advocacy organization which ensures that children's mental health remains a highly visible, national priority. Individuals, families, institutions, communities, and legislative bodies at all levels work collaboratively and creatively to promote success for each child. Call 1-800-492-4951 for information about services.

H.O.P.E.

www.hopeinconline.org Provides mobility, educational and recreational opportunities to physically and mentally challenged children, adults and their families.
Independence, Inc.

www.independencecil.org

Email: agency@independencecil.org

Nonprofit consumer driven organization for individuals of any age with a disability. No charge for services. Provides information, referral serices, assist with obtaining adaptive equipment, advocacy, IEP assistance, independent living skills, ADA assessibility surveys.
Infants and Toddlers with Disabilities

http://www.ndearlyintervention.com Program is designed to identify children at risk in the earliest stages, when the right help can make all the difference. If you know a child who may benefit from this program, please contact the Department of Human Services.

IPAT
(Interagency Program for Assistive Technology)

www.ndipat.org Technical assistance to reduce barriers and build the support systems necessary for individuals in North Dakota to obtain and use AT devices and services.

Learning Disabilities Online http://www.ldonline.org/finding_help
/local_org/ndakota.html

The LD OnLine Report offers news about learning disabilities and about the latest events on our Web site. LD OnLine and The LD OnLine Report are made possible in part by generous support from Lindamood-Bell Learning Processes and The Mitsubishi Electric America Foundation.

Legal Assistance of North Dakota


www.legalassist.org

 

Legal assistance in civil, non fee-generating cases for low income residents in North Dakota.

Tollfree: 1-877-232-5263

Lutheran Social Services
http://www.lssnd.org/ A statewide, not-for-profit social service agency providing a wide variety of services such as A.A.S.K., family based services for families in which one or more children are at risk for being placed outside the home, independent living skills, healthy families, and other programs working with families are available.
Make-A-Wish Foundation
http://www.wish.org/ Make-A-Wish Foundation of North Dakota
Serves the entire state of North Dakota
Office Phone: (701) 280-9474
Toll Free North Dakota Only: (800) 362-9474
E-Mail: ndakota@wish.org
Mental Health Association

www.mha-nd.org Addresses all aspects of mental health and mental illness. NDMHA works to improve the mental health through advocacy, education, research and service.

ND Center fpr Persons with Disabilities

NDCPD

http://ndcpd.misu.nodak.edu/home.htm To provide leadership and innovation that advances the state-of-the-art and empower people with disabilities to challenge expectations, achieve personal goals and be included in all aspects of community life.
ND Department of Public Instruction http://www.dpi.state.nd.us/speced Provides leadership for a comprehensive system of educational opportunities for all people of North Dakota.
North Dakota Parent Assistance and Supportive Schools ~NDPASS~

www.pathfinder.minot.com

Email: ndpass1@minot.com

North Dakota's source for parent information. NDPASS is a federally funded Parent Information Resource Center who works with regular education children, and not with Special Education.
North Dakota Special Education (DPI) www.dpi.state.nd.us/dpi/speced/index.htm

Special Education, Dept. of Public Instruction
600 East Boulevard Ave. Dept 201
Bismarck, ND 58505
(701) 328-2277
TTY: (701) 328-4920

OPTIONS

http://www.macil.org Provides Information and referral services, peer counseling, advocacy, independent living skills training, community education, equipment repair, recreational activities, and home modifications. Services provided in Minnesota and North Dakota.
ND Partners In Policymaking www.partnersinpolicymaking.com
/resources.html

The purpose of the program is twofold: To teach best practices in disability, and the competencies of influencing public officials.

contact Partners in Policymaking
Joyce Smith, Program Coordinator
North Dakota Partners in Policymaking
Dakota CIL
3111 E. Broadway Avenue
Bismarck, ND 58501
(701) 222-3636; (800) 489-5013
E-mail: joyces@dakotacil.org
Web: www.dakotacil.org

Pathfinder Family Center

http://www.ndpass.minot.com NDPASS is a project under the Pathfinder Family Center umbrella. NDPASS is a federally funded Parent Information Resource Center who works with regular education children, and not with Special Education, which is the case with Pathfinder PTI.  Pathfinder PTI provides definitions of disabling conditions, systems, policies, procedures, entitlement and eligibility. Provides information regarding nonprofit organizations and support groups, laws, procedures pertaining to special education.  Provides family and teacher support materials, as well as public awareness on disabilities. Provides direct assistance through understanding parent involvement with schools in special education, understanding individualized Education Program (IEP) development and content.
Prairie Harvest Foundation

http://www.prairieharvest.net/ Provides community based services to vulnerable adults and children. Quality of life is enhanced through improved living environment, access to services and programs, and the opportunity for employment. 
Protection & Advocacy Agency

www.ndpanda.org The Protection & Advocacy Project is concerned with asserting the human, civil and legal rights of people with disabilities, especially those who are not able to protest deprivations on their own behalf. The Project operates in a manner which is consistent with the belief that people with disabilities have the same legal and constitutional rights and guarantees as every other American citizen.
Ronald McDonald House
http://www.rmhcfargo.org/index.htm Provides lodging and emotional support to parents and siblings of children requiring medical treatment who also benefit by knowing their families are close by
Salvation Army
http://www.redshield.org/ The Salvation Army, an international movement, is an evangelical part of the universal Christian Church. Its message is based on the Bible. Its ministry is motivated by the love of God. Its mission is to preach the gospel of Jesus Christ and to meet human needs in His name without discrimination.

Program services are constantly expanding and include financial assistance, counseling, and casework services when necessary.

Special Olympics
http://www.specialolympics.org

Special Olympics is dedicated to empowering individuals with mental retardation to become physically fit, productive and respected members of society through sports training and competition.

Special Olympics North Dakota
2616 South 26th Street
Grand Forks, ND 58201
(701) 746-0331
(701) 772-1265 (Fax)

Kathy Meagher, Executive Director
Social Security Administration
http://www.ssa.gov/denver/index.htm Disability benefits are provided under two programs: the Social Security disability insurance program and the Supplemental Security Income (SSI) program. Children may qualify for disability benefits under either the Social Security program or the SSI program.
The Village Family Service Center

http://www.thevillagefamily.org

The Village provides a full range of services including counseling programs, adoption, financial counseling, unplanned pregnancy counseling and mentoring programs like the Big Brother Big Sister Program.

The Village has offices throughout North Dakota and Minnesota, and serves people nationwide through The Village Business Institute.

Vocational Rehabilitation (701) 328-8950
(800) 755-2745 (In ND)
(701) 328-8968 (TTY)
Vocational Rehabilitation
600 S. 2nd Street, Suite 1B
Bismarck, ND 58504-5729
Women's Way 
www.womensway.net Breast and Cervical Cancer screening program for women with financial and insurance barriers.  Danielle Kenneweg, Coordinator, Cancer Prevention and Control, ND Department of Health